Category: Misc

Surf’s Up

I don’t plan on doing this regularly, but just wanted to give a quick heads-up about COVID numbers in the UK.

As you can see, we are well and truly into our second wave, with numbers now on a par with the initial wave. I’m using our government’s official source (as at 24/9) for these graphs, and the different colours you see represent the different countries of the UK. There is speculative talk in the media about a second wave happening in the future, if we’re not careful. I’d suggest that it’s here already, wouldn’t you?

Deaths, however, have not followed suit. There will be a lag between contracting the virus and death, so I am wondering whether we are just looking at that lag, although there was no great lag during the first wave. Time will tell, I suppose.

Locally, my area has very few cases, but that was always the case. If we do see a spike, it is a cluster of three or four people. I heard on the news tonight that Glasgow University alone was dealing with more than a hundred cases, so I think I’m getting off lightly.

Personally, I’m still as locked-down as I was back in March – it’s not so much being unable to go out, it’s more having no overriding reason to go out, and choosing to stay home.

I was prompted tonight because I looked at the numbers for Italy, whose government seems to have done a far better job of keeping a lid on this second wave.

Cheap

Just watching the News here. The main items, of course, are UK news.

Boris Johnson.

They knew about him before he became mayor of London. They certainly knew about him afterwards. Like his cousin in the US, former advisors made small fortunes with their revelations. Unable to grasp the detail. A bit of a buffoon.

But he has charisma. Oh, the applause he received when he promised to lie in front of the bulldozers if they started digging at Heathrow Airport.

When he happened to campaign on the right side in the Brexit referendum (and it was a margin call) he became impossible to ignore. He was promoted to the cabinet, and was a part of the government which… approved the new runway at Heathrow. But no matter, talk is cheap. Say one thing, do another. Talk is cheap.

But he has charisma. Conservative MPs elected him their leader. He has charisma. He unified the party. With a straightforward message on delivering Brexit, he won a General Election. Decisively. He has charisma. He’s now trying to row back on the original Brexit agreement, but no matter. Talk is cheap.

COVID. Takes us all by surprise. We appreciate the value of Test and Trace. We will test some more. 10,000 per day, by the end of the month. We miss that target. So we increase the target to 25,000. We miss that target, too. Early on, Johnson promises a “world-beating” Tracing App. Nothing materialises, world-beating or otherwise. But no matter, talk is cheap. But over the months, testing increases, quickly at first, but more slowly between May – September. The “second wave” has been promised since July.

Testing is being shown as woefully inadequate. “Nobody could have predicted the need”, says a Johnson supporter. “We predicted it in March”, say the WHO. But no matter, talk is cheap.

But it is worldwide. Peru’s president: we will defeat the virus. Echoes of Winston Churchill. I bet their public love them for it.

Now tell us how. Talk is cheap. India has a says it has a refreshingly low death rate. Because it isn’t counting them all. Talk is cheap.

And relax…

Had a bit of a learning experience this evening. We’d had a bottle of wine on the side for months. I must have brought it in for some occasion, but we didn’t get around to drinking it.

For one, I used to be a wine buff, although I don’t drink much now. For two, we went on our honeymoon to the Corbières region of southern France (if you know your French geography, the Carcasonne area). On our honeymoon, we drank wine from the Chateau Grand Moulin (a moulin is a mill). Okay, in the grand scheme of things, there are more prestigious wines than from the Corbières region, but this wine was delicious. It was a red which my wife actually liked – she didn’t normally drink reds.

We enjoyed the area immensely, and a couple of year later we holidayed again in the region, for a full two weeks. I made a point of seeking out the chateau, met the patron, and we bought a case to bring home. Mixed – reds, whites, rosés. Over the years, we have chipped away at this wine, we’ve holidayed in other areas such as Bourgogne and Bordeaux, so have collected many wines, directly from the producers, over the years. But I must’ve brought a bottle of a 2002 rosé from the Grand Moulin into the house at some point to drink. Which never happened.

I finally got tired of looking at this bottle, so started chilling it a few days ago, and determined to start it, at least, with my evening meal this evening.

I’d never given it any thought before, but how the **** does someone open a bottle of wine, one-handed?

I dug out an old corkscrew:

but no, I could screw it in, but didn’t have a hope of pulling it out again. So, how was I going to have my glass of wine, since currently I am home alone?

After a bit of head scratching, I decided to root through another drawer, and after an exhaustive search, found a different type of corkscrew:

I still can’t operate it one-handed, but a hand and a chin does the job nicely.

Ah…delicious. But, the hoops I must jump through. Still, must be time for another glass…

Cast Off

Disabled is a funny old word. What exactly is disabled? Nuts and bolts? What’s the difference between disabled, and a bad arm, bad leg, depression, etc? Well, one measure is whether you’re in receipt of the relevant benefit, and the UK’s main disability benefit is called PIP, Personal Independence Payment. It’s a form of Newspeak. They cut people’s bus services, then tell them they’re independent. Go figure! But I must not get bogged down. In theory, parliament sets the rules, and they are implemented by the benefits agency, the DWP (Department of Work & Pensions).

At least, that’s the theory. When the DWP makes a decision, people often appeal that decision because they feel it is wrong. Almost 3/4 of these appeals are successful. As far as I can tell, if the DWP were implementing the rules properly, then that figure would be in the region of 0. Okay, it’s never going to be that low. Every case is a judgement call, so you’re bound to get some of them wrong.

And, believe it of not, I do support their aim. With any benefits system, disability, immigration, whatever, you’ve got to have some sort of test. A high jump, where if you jump over the crossbar, you qualify for the benefit, and if you don’t, it’s I’m sorry… Political parties will disagree exactly how high that crossbar should be, but they all agree that thee should be one. Otherwise you’re either giving the benefit to everyone or to no-one.

I was debating with somebody once about whereabouts that crossbar should be. Quite reasonably, she suggested that expert medical opinion should play a part. Quite often, they ignore medical opinion and…did I mention how many people appeal and win through?

But there’s the rub. I have only had one appointment with a doctor in almost four years since the stroke. Even that one appointment, three months after discharge, the main purpose was to tell me that I was on my own, that no further help was available. Further? I was left wondering what help I’d been given in the first place! It left me thinking that if I were a consultant, earning magebucks per year, it might really harm my job satisfaction to have a dozen years of healing experience under my belf, and to be stuck with telling people all the time that I couldn‘t, or rather, did not have the resources to, help them. If it weren’t for the fact that I was earning megabucks.

Of course, I have had contact with the NHS over that time. I take meds every day so need to restock those regularly, for starters. And I’m quite happy to get blood tests – I’ve learned myself what the results mean. And, bear in mind that my wife is a diabetic nurse. But as for visits to the local surgery, I try to keep those to a minimum. For one, I was on meds prescribed by these guys when I had the stroke, so how preventative was that? Okay, be reasonable, it might well have happened anyway. True, it might, but isn’t it suspicious that every one of my meds was changed while I was in hospital? Almost as though I was on the wrong meds to start with! Even since the stroke, I was told by a receptionist there that she wouldn’t help me to get some form printed off – at the time, getting to the surgery was just about my limit, so I was not best pleased that my journey had been fruitless. That particular episode resulted in a complaint, but I doubt I was taken seriously. So when wife asks me if I want to go to their Christmas party, it’s always a curt, No, thanks.

Taking medical advice on board is fine, but a lot of disabled people are cast off by the system, to sink or swim for themselves. They don’t see doctors for long periods – disabilities are generally long-term, so this could be years. And, they likely won’t have seen their hospital doctors since they were discharged.

Have I Got News For You

Well, no, actually, because I’ve stopped watching the UK political satire show Have I Got News For You.

It happened a few weeks ago, I wanted to let the dust settle, but still feel as strongly now.

The incident which precipitated my decision happened online, rather than on tv. They posted a photograph of the Tory leadership debate. At the time, Sajid Javid was one of the contenders. The photograph showed him sitting awkwardly on his stool. The caption read along the lines, “And you trust him to run the country?”

Here, I make the leap that running the country requires a degree of intelligence. It is a leap of faith, I know. But the point of the joke was to imply that somebody with this physical “foible” (beforehand, I never even knew there was a proper way to sit on a stool) he was unfit to do this intellectual task.

I’m afraid I thought of all the disabled people who have been told they are not fit to do a job because of their disability. Of all the black people who’ve been discriminated against, simply because of the colour of their skin. That they are disqualified from something, for reasons totally unrelated. That it is dressed up as satire does not make it right. This is real life, not satire. Past and present tense. These words harm real people.

So, I said something.

You should have seen the hatefulness of the responses! Because Javid wasn’t disabled, attacking his physical characteristics was ok. Even if they were unrelated. (I have no idea whether Javid has some kind of disability or not, if he does, he certainly doesn’t disclose it, but he might quite reasonably hold the view that it is nobody else’s business).

Even that for finding this not-at-all-funny, I was an example of everything that was wrong with the country. I wonder how much charity work that guy did? how many people he helped each week? (Actually, I knw the answers to these without even asking, since nobody who does voluntary work would describe someone in such a way.) The comments reminded me, I’m afraid to say, of people who joyfully laughed at nig-nogs on Seventies UK TV, until society told them it was wrong. Wrong is wrong, something might be commonly acceptable, but that doesn’t make it right.

There is another point, here. At what point does fun (satire, say. Sport is also a good example, I’m old enough to remember when we’d never play with the South Africans) stop, and you take the matter more seriously? I leave that one for you to ponder.

Blue Badge

I have just gone through the process of renewing my Blue Badge, which runs out at the end of March. Do you have Blue Badges where you are? If not, it is a scheme which designates some parking spaces as “specially reserved for disabled people”, and the holder is supposed to show a Blue Badge in their car to prove their eligibility to use the space.

Give our government credit where it is due, their web site was very clear i this area, applying was long-winded but straightforward. There was a bit of to’ing-and-fro’ing because originally, the photo I supplied wasn’t good enough, but even that was sorted out quickly and by email.

The only time my eyebrows were raised during the process was with the volume of data they collected. There was a lot of medical stuff on there. Yet my friend, who is a doctor, says that he was never asked to substantiate an applicant’s claims of disability. So I’m sure this data is held on file somewhere, but not used. It raises an eyebrow in particular in the context of the GDPR, rules regarding data privacy, which came in in the EU last year – these rules specifically state that you shouldn’t collect more data than is necessary.

Anyway, aside from this grouch…

A month later (end April), my disabled bus pass is scheduled to run out. To me, it appeared co-incidental, although I’ve since been told that the two things are timed deliberately.

The government’s Blue Badge application was pretty seamless, then – doable in a few clicks. The council’s bus pass application less so. The form was easy enough, but it was on paper and required a signature at the end.

A quick aside – the stroke left me without the use of my limbs down one side. My writing side. Specifically, any writing is out. If you want me to write, I have to use my “wrong” hand. I’m probably quite safe in predicting that when it comes to writing with the wrong hand, I’m every bit as bad as you are!

So, I queried this. Don’t you have an online version of the form that I can fill out? one that doesn’t require a signature? The response I got was a stonewall “No, either you or your representative needs to sign it”. My representative? That opens up another can of worms. I have full cognitive ability – why therefore would I need somebody to represent my interests? The big deal for disabled people is to be able to live independently, and the local council either don’t realise this, or don’t care.

I mean, if you’re able-bodied, this will all be a storm in a teacup, but to me, as a disabled person, it is a big deal.

It all seems perverse, because these people deal specifically with giving bus passes to disabled people, so you’d think there would be some kind of empathy there. They must be familiar with somebody’s disability meaning that they can’t fill out the form properly. Especially when the government do make it easier – the bar to qualify for the blue badge will be at the same height as the bar for the bus pass. Indeed, one of the acceptable “proofs” for the bus pass is a photocopy of your Blue Badge. So, why not make the applications as easy as each other?

Independent Living

It is pre-8am and have already completed what will be the secondmost Helculean task of the day. I’ve stripped my bed and just put it in the washer. At least, it was pre-8am when I did this – it’ll be later when I publish the post. But, anyway, the biggest task will be getting it all back on again later.

 I still sleep in the same double bed that my wife and I used to sleep in. She moved out into a more comfortable bed, she says that I fidget too much in the night, but I’m happy in it. The base sheet is still a double, but everything else is single – purely to deal with the washing scenario. Any bigger sizes are just unmanageable.

I can just about manage the base sheet, by using the frame of the bed as a stepping stone – I’ve learned to hook it on there to get everything taut, before I tuck each corner under the mattress. I’ve tried, and failed miserably, with the original double duvets so bought singles. They were easy enough to get off, but I’ll swear a lot later trying to get them back on! We saw these gadgets that are just like 6-inch long plastic paper clips, which help get the cover back onto the duvet, just by clipping the corners in place, one by one.

The careful observers amongst you will ask, why doesn’t your wife help you? In truth, she offers, but it is important to me that I be able to do this independently, so I refuse. To give an idea of how strongly I feel about this, I’d go without changing bedding altogether if I needed someone’s help every time – she thinks I’m mad but people who aren’t disabled never understand the importance of independence to somebody who is disabled. It is a bit weird – when we both slept in the double, putting freshly-washed bedding back onto the bed was something we always did as a team effort, without thinking. But now I need to cope on my own. 

You notice the same thing, by the way, on official forms. Even those forms with are designed specifically in order for a disabled person to claim something, they are constructed such that the disabled person often cannot fill them out unaided. Wiltshire Council are terrible for this, just in terms of my personal experience. It does kinda make you wonder because, here I am looking for work, and they have this gaping hole in that they don’t understand what makes disabled people tick, despite the fundamental constraint that it is the duty of the council to provide a lot of concessions for disabled people. With my wife I can forgive this because it is a learning process for us both, it is less easy to forgive a council who must deal with disabled people all the time. 

Oh, the other question you might well ask is, will I be putting the washing out to dry afterwards? I’m afraid not, the damp stuff is a bit heavy and I can just about get it into the tumble dryer, in about 3 trips. To carry it outside and manouvre it onto the line (pegging it along the way) defeats me. Trust me I’ve tried!

Jeremy Vine

I happened to catch a bit of The Jeremy Vine Show today. I do like the programme, but I often miss it because there are usually other things going on. He has a know-it-all GP on there whom I find irritating (most doctors I’ve met, their favourite phrase is “I don’t know”) but nobody’s perfect.

Today he covered a story about a girl with Asperger’s who was ejected from a cinema for laughing too loudly. The story is also reported here.It sounds like a very tricky situation for both parties. On the one hand, this seems heavy-handed, but on the other, the cinema has other clients’ interests to look after.

I can’t pretend that I know the answer, but would just make the following observations:

  1. For a disabled person to basically say “cut me some slack, I’m disabled” is very much a last resort. Trust me, I know. On the converse, I will judge people based upon whether they force me to reveal that I am disabled (under circumstances where it isn’t otherwise obvious). In so many of life’s scenarios, it just shouldn’t be relevant – my background is none of their business. I mean, it is very difficult to put yourself in someone else’s shoes, but I wonder if there are parallels here?
  2. It’s interesting that a part of the story is that some guy was also ejected for shouting “you’re retarded”. I can’t help thinking there of a hate crime, as defined by one of Tony Blair’s early acts (1998?) I mean, that certainly seems to meet the definition of verbal abuse. I’m not sure whether Asperger’s would count as a disability, it wouldn’t surprise me. Of course the difficulty would be showing that the abuse happened because the woman said “I’m autistic”. He could just claim that he said that because of her behaviour, not because she was autistic or not. But certainly, people need to be careful. I’m sure if this woman made a complaint, then it would at the very least lead to a degree of inconvenience for the guy, in terms of interviews under caution etc. So, wiser just to keep one’s counsel. 
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