Funny, that

I was having some coffee with my stroke buddies today. Someone started talking about one of the standard stroke tests. “That’s funny”, pipes up someone else, “I never had that test.”

It’s funny, because we all had different stroke experiences, but a common theme was that we all felt let-down in some way due to a gap between theory and practise. I’ve commented more than once to the Stroke Association (the UK’s stroke charity) that, in terms of priorities, top of the pile should be consistency, throughout the country. After that, we worry about raising standards.

The Stroke Association, by the way, are every bit as poor as the NHS, in terms of what actually happens to stroke patients. When I first colunteered, I attended a seminar where somebody said, “when x happens, then doctors do y“, and I’m afraid it isn’t so. It might happen, sometimes.

I can totally understand that the NHS has a “goal”, in terms of treatment, but they don’t always meet that goal. If fact, anecdotally, they hardly ever meet it. And I can totally understand that it is useful for the Stroke Association to cosy up to the NHS, to not want to rock the boat by highlighting poor treatment. But they should know that with some of us, the NHS’s plans fall some way short.

Author: Mister Bump UK

Designed/developed IT systems for banks, but had a stroke in 2016, aged 48. Returned to developing from home, plus do some voluntary work. Married, with a grown-up, left-home daughter.

One thought on “Funny, that”

  1. Reblogged this on Stroke Survivor and commented:

    Yay, it is Friday once again, which can only mean one thing – Fandango’s Friday Flashback. Fandango uses these posts to reblog one of his posts from this day in a year gone by, just to let his current readers see what he was up to back then. I feel like I am on a path of recovery, so the idea is useful for me because it indicates how I’m progressing along that path.
    Two years ago I tended to focus a lot more on my health experiences, where now (I think) I have taken on more varied interests.
    Certainly in the UK, our Health experience is very personal. Nobody else knows your health story, not even your partner if that’s your choice.
    Which is exactly as it should be. But the flip-side of this is that we end up living in silos, not necessarily appreciating what other people have gone (are going) through, and making it difficult in particular to spot flaws in the system itself. We will base our judgement on our own experience of the system, whether it is good or bad.
    One place where I specifically did encounter other peoples experiences was in the peer support group I used to attend, and this is the subject of my flashback, a post from two years ago today.
    My post highlights how the system does not always work as it should. It is variable. In some cases, it varies because human beings are fallible, although other variations occur depending on whereabouts somebody lives. I argue that there should be a single, consistent standard across the country.
    Indeed, taking this argument a step further, I think this issue highlights one of the areas where central planning is absolutely appropriate.
    Incidentally, I briefly mention the stroke charity in the post, and I must admit that this is one of my pet peeves with them, which has only grown over the years. When I finally decide to stop volunteering, it’ll probably be for this very reason. I know what happened to me, and I’m quite happy to talk about it. When I talk about my personal experience, which admittedly was four years ago, I am often contradicted by the charity – oh, it is better than that now. And I look around me, and I see four more years of austerity everywhere, and I think, “yeah, right”. The Health environment certainly hasn’t improved, so to suggest that our Health Service has suddenly had a brainwave to improve the way it works, just in these last four years, well….I find that unlikely. Or, maybe I’m just becoming more out of touch?

    Like

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