Disability Rights

Today I found out about the charity Disability Rights UK, liked the look of them, and joined. I was looking at a post on an Internet forum a few days ago, and the author was saying that she’d been discriminated against in her workplace, purely on the grounds that she had once had a stroke. It made me think…..what exactly were their rights?

I thought on about it this morning and asked the Stroke Association if they knew, and ironically they pointed me toward Disability Rights UK. I say ironic, because these people seem more relevant than the Stroke Association themselves, although I suppose that the two do have a different purpose.

But I do find a lot of the stroke stuff has politics at it’s heart, and I have found the Stroke Association to be very wishy-washy in that area. There seems to be an overwhelming intention by the trustees of the charity not to “rock the boat”, and for that reason my support for them has to be qualified. I think you need to feel that you can criticise the government of the day, if they’re making poor decisions about strokes. It’s a big reason why I’ve avoided conferences arranged by the Stroke Association. I mean, you don’t have to be militant, but you should be able to make your point. How much of my own treatment has actually been driven by economics over clinical need?

Din

My daughter happens to be visiting the house for a few days, to see my wife on Mother’s Day, the place has become very noisy. All I can say is, that saying about empty vessels is very true. I mean, there’s nothing whatsoever malicious, just a desire to be the centtre of attention at all times.

Ronnie Moran

So sad to hear of the death of Ronnie Moran, the Liverpool FC coach. Although I was never a fan of LFC, he was one of the constants in what could be thought of as the Liverpool family, before money took everything over.

Reassured

I got an email today from Age UK, co-incidentally after yesterday’s blog.

The message was clearly directed at all volunteers, so presumably I am “on their list”, so I suppose I am reassured by that.

I do find it a bit strange that they didn’t contact me (it could even have been a nothing email, just something as a pretext) to let me know that the application process was complete, and that they were just waiting for someone suitable to get in touch (I told them that I’d ideally like to befriend someone within a short distance of my house. There are lots of elderly people in this village.)

Ironically, the person they did contact me about lives too far away for me to be able to help.

Limbo

So there’s a couple of areas of life that are quite frustrating at the moment.

First, I’m looking for a job. I mean, for years, I designed IT systems. This really was top-of-the-Premier-League stuff, although it often didn’t feel like it. But the sacrifice here was that I needed to travel up to central London each day. In fact, at one stage, a long time ago when I was single and prepared to travel a bit further, I worked for a spell in New York City. Although the stroke has left me with some physical impairments, obviously these roles were purely intellectual in nature. And hopefully the reader will judge that I still have this intellect. So I’ve been brushing up on some technology skills, just because having these “hard” skills makes the “soft” skill of system design that much easier to convey. You often find that there needs to be a period, while a trust is established, which is effectively a “probation”.

On the plus side, the stroke has meant that I’d settle for lower-league work these days. So I’d be far less choosy about the nature of the work. Possibly something outside of IT altogether – I’ve always been very numerate, and started my career off as a research scientist. But I’d want something local – I wouldn’t want to tire myself out on the commute, before I’d even done a day’s work. For the same reason, I’d want something part-time to give myself time to recover.

I have several problems here. First, there is very little IT, period, in the Salisbury area (Salisbury is my nearest city). Second, it is very rare to find IT jobs that aren’t full-time. Third, I suppose, I’d like to find something that is accessible by public transport, although I should be able to fix this myself somehow.

So, in the meantime, it is a case of keeping looking.

Second, my volunteering appication for Age UK appears to have stalled. I went to their inductions, and they asked me to undergo a criminal record check. I did this (absolutely clean), and emailed the certificate back to them, to an address I’d used before. Since then, nothing. Not even a “welcome on board” message. This must be about 6 weeks now. I mean, in some ways I don’t mind, because the volunteering role had turned out to be not quite what I expected, but even so…

You see, in many respects, my life is identical to somebudy’s who is able-bodied.